[image quote]: "There's too many factors that result in bad medicine and bad medical care." - K, Episode 18; Ehlers-Danlos Syndrome patient

[image quote]: "There's too many factors that result in bad medicine and bad medical care." - K, Episode 18; Ehlers-Danlos Syndrome patient

18 Well It's Complicated (episode page)
Description: In today’s episode I talk to K about what is considered normal vs disordered behavior, being nongendered, the intersection of fat hatred, sexism + ableism, embodying the fears of the able bodied, imagined expertise, and the dual reality of self diagnosis, especially for those living with rare or rarely diagnosed conditions.

[intro]
Hey there and welcome to In Sickness + In Health’s first bonus episode! This is a podcast about chronic illness, disability, medical traumas, and everyday uncomfortable healthcare experiences. My name is Cara Gael; I’m not a doctor or medical professional, I’m just a person and a patient who really wants to talk about this stuff more.

Nothing said on this show should be considered medical advice. If you’re experiencing a medical issue, please seek qualified medical help. I know the system sucks, but I wish you a lot of luck. Every person is different, even within disease groups, so none of my guests should be regarded as official representatives or spokespersons for their conditions. Please respect their very personal choices, and unless they ask for it, please don’t make suggestions about treatments or lifestyle changes. Unsolicited medical advice is almost never not annoying.

In today’s episode I talk to K about what is considered normal vs disordered behavior, being nongendered, the intersection of fat hatred, sexism + ableism, embodying the fears of the able bodied, imagined expertise, and the dual reality of self diagnosis, especially for those living with rare or rarely diagnosed conditions.

Like I say about medical conditions at the beginning of every show, every person is different and their experiences are unique and personal to them—that same thing can be said about gender. So K talks about being a nongendered individual, and what that means to them, but their experience is by no means a representation of all nongendered people’s experience of gender and everything that comes with it. I mention having discussed the difference between sex + gender in a previous episode, but didn’t remember which one it was. I went back and looked and it’s in the introduction to episode 14 - Let’s Get Physical.

You'll be able to hear part two of my conversation with K, about EDS and some of the other diagnoses they have, in another episode coming soon, so stay tuned for that.

I know we get a little harsh about doctors sometimes on the show. The reason for this is that the majority of our interactions with doctors, or at least the ones that really stand out, have been fairly negative. We point out in this episode that not all doctors are dismissive and distrustful of their patients, and I’m happy to report I personally had a very positive experience with a new Primary care provider last week. So, sorry if we sometimes make negative, sweeping generalizations about your entire profession. I know there are a lot of factors that go into shaping the attitudes physicians have toward their patients, and some people are just monsters.

My voice is trying to escape from my body again, so I’m gonna leave this intro at that. Find more from In Sickness + In Health at insicknesspod.com and on social media @insicknesspod. You can email me at insicknesspod@gmail.com, and if you could take a few moments to rate and review us on iTunes, it will help other people find the show.

[interview]

[outro]
Thank you for listening to In Sickness + In Health. You can find more from us at insicknesspod.com and on social media @insicknesspod. If you can take a few moments to rate and review us on iTunes, it will help out the show.

And don’t forget to be excellent to yourselves and each other.