[image quote]: "There were many women I knew that went in for the transplant but then never made it out of the hospital...and I just thought, 'Why do people go through this if they don't even make it out?'...then I started meeting some women my age and younger who actually had successful transplants." - Nikki, episode 25; LAM + Tuberous Sclerosis patient

[image quote]: "There were many women I knew that went in for the transplant but then never made it out of the hospital...and I just thought, 'Why do people go through this if they don't even make it out?'...then I started meeting some women my age and younger who actually had successful transplants." - Nikki, episode 25; LAM + Tuberous Sclerosis patient

25 Transplants + Inside Baseball (episode page)
Description: In this week’s episode I talked to Nikki about qualifying and listing for a double lung transplant due to her rare disease LAM. We talk transplant stuff and get Nikki’s insider perspective on the American healthcare system. She actually used to work on the inside of health insurance and has a unique perspective on what the future might hold for the system.

[intro]
Hey there and welcome to In Sickness + In Health, a podcast about chronic illness, disability, medical traumas, and everyday uncomfortable healthcare experiences. My name is Cara Gael; I’m not a doctor or medical professional, I’m just a person and a patient who really wants to talk about this stuff more.

Nothing said on this show should be considered medical advice. If you’re experiencing a medical issue, please seek qualified medical help. I know the system sucks, but I wish you a lot of luck. Every person is different, even within disease groups, so none of my guests should be regarded as official representatives or spokespersons for their conditions. Please respect their very personal choices, and unless they ask for it, please don’t make suggestions about treatments or lifestyle changes. Unsolicited medical advice is never not annoying.

This will be a short intro to this late episode because I did my taxes yesterday, and it was really quite taxing. I just don’t have the spoons to really make words happen right now.

In this week’s episode I talked to Nikki about qualifying and listing for a double lung transplant due to her rare disease LAM, which even I’m not going to attempt to pronounce the long name of because it is a doozy. Her longer origin story about living with LAM and tuberous sclerosis will be part of a future episode. This one is mostly about the transplant stuff and discussion about the healthcare system with Nikki’s insider perspective. She actually used to work on the inside of health insurance and has a unique perspective on what the future holds for our healthcare system.

You can check out Nikki’s blog at ilivebreathe.com, and find her on twitter @nikkiseesfeldt. Find resources and more from us at insicknesspod.com and on social media @insicknesspod. I hope you enjoy this episode!

[interview]

[outro]
Thanks for listening to In Sickness + In Health. Find resources and more from us at insicknesspod.com and on social media @insicknesspod.

And don’t forget to be excellent to yourselves and each other.