47: Australian Appearance Activist Carly Findlay

I talked to Australian Appearance Activist and writer, Carly Findlay, about her experience living with Icthyosis, telling our stories on our own terms, the value of our personal information, identity, and the Australian healthcare system. She also told me about living through my worst nightmare when one of her photos was misused and went viral on Reddit.

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I Survived My Trip to California! ✈️

There was so much planning that went in to making this trip possible, and that helped me survive the travel and increased activity. I planned the trip with extra rest time built in to ensure as much recovery as is possible for me. I am so grateful for everyone who pitched in, with places to stay, and helping me with luggage, and being understanding about my constant need to sit down and/or nap. 🙏

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About bgw for #MedX

This project was produced for the 2016 Stanford Medicine X ePatient Storyteller Track: I am an artist, health advocate and podcaster who has lived with complex chronic illness, and the chronic uncertainty that comes along with it, for more than two decades. As someone juggling multiple invisible illnesses, much of my work has been about visibility, and making visible what has previously been unseen. In my attempts to seek diagnoses and validation, I have used many of the quantitative symptom tracking apps that have been available for iOS in recent years. The Instagram account, @bimpsegetsweird, is my attempt at qualitative self tracking to better capture my quality of life, which has too often been underrepresented in other self tracking data.

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REVIEW: The Fay Farm's Rejuvenation CBD Lotion

When I was presented with the opportunity to try out The Fay Farm’s Rejuvenation CBD Lotion, I will admit that I wasn’t expecting much. I’d had my eye on some hemp-derived CBD products for a while, but didn’t want to shell out the cash to try something that I wasn’t convinced would work. In the never ending quest to manage my chronic pain, I’ve already spent so much on topical pain relievers, supplements, and medieval torture devices, most of which I have wound up barely using at all....

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