Patient name: Ryan
In this episode, I talked to Ryan Prior, co-director and producer of Forgotten Plague, a documentary about ME/CFS. I made Ryan hold the microphone because my arm was tired, and he wound up kind of interviewing me a bit. We talked about ME/CFS, POTS, how the two patient populations overlap, and some of the performative aspects of being a patient. I talked about living with and trying to manage POTS, quality of life, and try to answer the question posed by the MedX Studio Space of how to foster disruptive co-creation in healthcare.
This conversation was recorded at the 2016 Stanford Medicine X conference in September, where Ryan and I were both ePatient Delegates on the Storyteller Track.
The documentary, Forgotten Plague (2015), is available on Amazon Prime, iTunes, Google Play, and DVD. Amazon Prime members can stream the documentary for free, and foreign audiences can find it on iTunes, where it's available in 7 languages. DVDs are at Amazon or ForgottenPlague.com.
Program in Narrative Medicine at Columbia University College of Physicians & Surgeons
Our Dysautonomia Series of the podcast
Episode 01 Dysauto-whatta?! w Lauren Stiles
Episode 22 Pain is Personal w Jen
Ryan on the Just Talking Podcast
Britt aka Hurt Blogger on Just Talking
- Hurt Blogger’s post Patient as Subject vs. Patient as Peer