Invisible Illness Awareness Week - Day One Recap

Invisible Illness Awareness Week 2015 runs September 28 - October 4 this year.
In Sickness + In Health will be participating here on the blog and on social media.

Day one of Invisible Illness Awareness Week was quite a doozy. So much so that my day two has so far consisted of sleeping until 1pm and attempting to recover with lots of Gatorade, and more rest. Below is a round up of some of what I participated in yesterday.

Invisible Fight

In case you missed it, I posted my 30 Things You May Not Know About My Invisible Illness  meme as part of the official IIWK15 festivities. I also blogged last week about the greatest challenge in my Invisible Fight--chronic fatigue.

Over on Twitter, I participated in Adios Barbie's #AdiosStigma Twitter chat about the stigma surrounding invisible illness. It was a wonderful chance to connect with some very smart ladies about the ridiculous stigma that is attached to living with a chronic condition.

Perhaps most exciting, was the incredible opportunity I had last night to present a painting of mine at the Bowery Poetry Club (and just for an indicator of how tired I am now, I just tried to spell that "Powetry" and couldn't figure out why it was wrong) in New York City, alongside some of the other writers and artists selected for the Fall 2015 issue of The Intima: A Journal of Narrative Medicine. My painting, Syndrome, is about making the invisible visible, and it was the perfect coincidence that I had the opportunity to speak about it yesterday, of all days. It was such an honor to have my work selected for publication, and it was really exciting and terrifying to get up and talk about my work in front of very talented and interesting strangers. I can definitely file that one under the LIFE section of #ChronicLife.

That's me trying to talk about my painting without throwing up or passing out.

That's me trying to talk about my painting without throwing up or passing out.

So that was my first day of Invisible Illness Awareness Week. It may not seem like a lot for some, but I'm certainly ready to go back to bed. I got a chance to connect with people from all over, both online and IRL, who share a common interest in the stories and issues that surround sickness and health. Working on this podcast project has taken me places, and given me a chance (or excuse) to connect with wildly interesting people of all kinds--and it's been the best.