Patient name: Chelsea
In today’s episode, Chelsea talks about her long term mystery symptoms doctors labelled an unknown rare disease, her complicated relationship with shunts placed to relieve intracranial pressure, her recent Lyme Disease diagnosis that may or may not explain everything, and the lack of knowledge and research that makes it all still so unclear.
In today’s bonus episode, we talk about the emotional trauma of being undiagnosed for so long, forced positivity and inspiration porn, her blog and misadventures in dating, and the sometimes dangerous business of being a woman in the world.
Listen and subscribe to In Sickness + In Health: A Chronic Illness Podcast wherever you get your podcasts.
Information on Alopecia universalis from the NIH
Information on Fibromyalgia from the National Fibromyalgia Association
Information on Hashimoto’s disease from Mayo Clinic
Hydrocephalus Fact Sheet from the NIH
"About Lyme Disease" from LymeDisease.org
"The Lyme Wars" from The New Yorker
"Ticked Off--What We Don't Know About Lyme Disease” from Forbes
Stella Young’s TEDx talk: “I’m Not Your Inspiration, Thank You Very Much”