2016 MedX ePatient Storyteller Projects
As a 2016 Stanford Medicine X ePatient Delegate on the Storyteller Track, I was tasked with creating three projects. I used this scholarship opportunity to learn from, compare notes with, and give voice to my fellow ePatients with Project UterX and The Stories We Tell. The third project, bgw for MedX, is a to return to my first love of visual art, while experimenting with new digital tools and exploring visual representations of pain. In this blog post, you can read all about my excellent adventure attending the MedX conference back in September 2016 at Stanford University School of Medicine.
bgw for MedX
An experiment in digital self portraiture as qualitative self tracking to better capture quality of life, which has too often been underrepresented in other self tracking data.
Project UterX: A Collaboration
A special podcast project about issues in inclusive gynecological healthcare for transmasculine and gender nonconforming individuals.
The Stories We Tell
A special podcast episode of In Sickness + In Health, featuring a handful of 2016 MedX ePatients, on sharing their own stories and the delicate balance of telling the stories of others.
These conversations touched on themes of identity, privacy, patient experience, using technology to find connection, and ways in which we’re trying to compensate for the many deficits that exist in our healthcare system through that connection and storytelling.