In today’s episode, I talk to Keah Brown about her writing, growing up disabled with an able bodied twin sister, visibility and intersectionality, learning to be nice to ourselves, not seeing herself as a black disabled woman represented in media, and what Keah plans to do about it.Read More
In today’s episode, S. Leigh Thompson talks about the hurdles to diagnosis as a trans person with complex health issues, healthcare insecurity, getting around the city with mobility limitations, and navigating society with invisible disabilities. In the bonus episode we talk intersectionality, the spectrum of ability and access, disclosure, hormones, and the potential for allyship between the the trans and disability communities.Read More
In this week’s episode, Beth talks about the current disability benefits situation in the UK. We talked about the cuts to disability programs, the recent surprise resignation of the mastermind behind many of these cuts, and the NHS approach to pain management—or lack thereof.
In this week’s episode, Cara talks to PhD candidate in Disability Studies, Kim Sauder, about #OrangeGate, the collision of sustainability and accessibility, and her blog post about the kerfuffle sparked by a single snarky tweet.Read More
In today’s episode Cara talks to K about what is considered "normal" vs. "disordered" behavior, being non-gender, the intersection of fat hatred, sexism + ableism, embodying the fears of the able bodied, imagined expertise, and the dual reality of self diagnosis—especially for those living with difficult to diagnose conditions.Read More
On this week’s episode of the podcast, In Sickness + In Health goes international! I talk to Ariane, an artist and crafter from Vancouver, Canada. She has a number of longterm, complex symptoms, but has yet to get a meaningful diagnosis. Cara describes some of the differences between the American and Canadian healthcare systems, and they talk about the challenges Ariane has faced in the Canadian system, trying to find answers to her long term symptoms, patient burnout, and figuring out how to live life beyond just coping.Read More
On this week’s episode of the podcast, Beata talks about being an adoptee with no family health history to rely on, accessible transportation, her work with the NGO Glaucoma Eyes, and getting published in an anthology of adult adoptee stories. She was born in Poland with cataracts, developed glaucoma during childhood, and is now dealing with some autoimmune issues including Hashimoto’s disease.Read More
Cara and Rebecca invite you to challenge some of what you think you know about disability, and the cultural messages we get about what a Disabled Person is. They discuss self advocacy, Rebecca's work toward better accessible transit options for Philadelphia and plans for a queer disability justice project, diversity of disability, and some of the social and economic issues that face the chronically ill and people with disabilities. At the end they talk about what they worry about, SSDI, and Imposter Syndrome.Read More
In today’s episode, Rebecca talks about the ups and downs of EDS, their long and winding diagnostic process, working 10x as hard to be half as healthy as everyone else, and redefining their value while not being able to work a paying job.
Next week I’ll be posting part two, where we talk about Rebecca’s advocacy work toward accessible transportation in Philadelphia, some of the social and economic issues facing the chronically ill and people with disabilities, reconceptualizing disability internalized ableism, and diversity of disability.
They live with Ehlers-Danlos Syndrome (EDS), dysautonomia including POTS, Mast Cell Activation Syndrome, gastroparesis, and several other diagnoses.Read More