Today is the ninth annual Rare Disease Day, an occasion honored each year to raise awareness around issues related to rare diseases and disorders. Taken together, rare diseases affect 1 in 10 Americans, and affect more people than AIDS and cancer combined. Worldwide, if we all lived in the same place, we'd make up the world's third most populous country. There's a lot more where that comes from, if you're looking for reasons to care about rare conditions.Read More
Below is a list of links to organizations close to my heart, that I recommend giving to this #GivingTuesday. You can also find many more organization on our Resources page. Of course, if you wanted to make a NON tax deductible contribution to something you can always give to In Sickness + In Health! You can also help us out without money by rating and reviewing us on iTunes, which helps other people find the show, and helping spread the word by telling people you know about us and sharing the show on social media.Read More
In episode 02, Ilana talks about failing alternative medicine, how she manages her career, blogging and her work for Global Genes, the horrors of GI testing, crying in parking lots, and attempting wedding planning while living with a very unpredictable, and very time consuming chronic illness.
She lives with a primary immune deficiency disease, dysautonomia, and gastroparesis.Read More