Today's episode is actually a "rerun" of one of my favorites from last year to mark Trans Day of Visibility. More new episodes to come soon, but I'm still recovering from the AHCA whirlwind. S. Leigh Thompson talks about the hurdles to diagnosis he's faced as a trans person with complex health issues, healthcare insecurity, getting around the city with mobility limitations, and navigating society with invisible disabilities.Read More
As a 2016 Stanford Medicine X ePatient Delegate on the Storyteller Track, I was tasked with creating three projects. I used this scholarship opportunity to learn from, compare notes with, and give voice to my fellow ePatients with Project UterX and The Stories We Tell. The third project, bgw for MedX, is a to return to my first love of visual art, while experimenting with new digital tools and exploring visual representations of pain. In this blog post, you can read all about my excellent adventure attending the MedX conference back in September 2016 at Stanford University School of Medicine.Read More
In today’s episode, I talk to Keah Brown about her writing, growing up disabled with an able bodied twin sister, visibility and intersectionality, learning to be nice to ourselves, not seeing herself as a black disabled woman represented in media, and what Keah plans to do about it.Read More
CW: eating disorder
In today’s episode I talk to Sofie about her experience in the Norwegian healthcare system as a patient with complex chronic illness. We talk about her experience trying to find a diagnosis that fit her symptoms, how EDS is classified and treated in Norway, and our complicated relationship with weather. In today’s bonus episode, we talk a little more in depth about the interplay between chronic illness and eating disorders, and about the ableism present in many diet communities.
In today’s episode, S. Leigh Thompson talks about the hurdles to diagnosis as a trans person with complex health issues, healthcare insecurity, getting around the city with mobility limitations, and navigating society with invisible disabilities. In the bonus episode we talk intersectionality, the spectrum of ability and access, disclosure, hormones, and the potential for allyship between the the trans and disability communities.Read More
In this week’s episode, Beth talks about the current disability benefits situation in the UK. We talked about the cuts to disability programs, the recent surprise resignation of the mastermind behind many of these cuts, and the NHS approach to pain management—or lack thereof.
In this week’s main episode, Cara talks to Heather about developing post traumatic stress symptoms after the medical experiences related to their chronic illnesses. In today’s bonus episode, they talk a bit about some of the therapies that have been studied as treatments for PTSD, including Heather’s experience with EMDR. They also talk about rates of PTSD among survivors of different kinds of traumatic events, and how it is often portrayed in the media, which comes witha few Grey’s Anatomy spoilers, though nothing from this current season.Read More
In today’s episode we talk about some of what Soul has been through during faer childhood, including three skin expander surgeries following the removal of a birthmark on Soul’s head. Fae talk about those surgeries, being undermedicated most of that time, finding out about a codeine allergy the hard way, not realizing how traumatic it all was until later, and how that’s complicated the process of transitioning from pediatric to adult care. In today’s bonus episode, we talk about needle phobia and figuring out Soul was autistic late in faer teens.Read More
In today’s episode Cara talks to K about what is considered "normal" vs. "disordered" behavior, being non-gender, the intersection of fat hatred, sexism + ableism, embodying the fears of the able bodied, imagined expertise, and the dual reality of self diagnosis—especially for those living with difficult to diagnose conditions.Read More
In this week’s episode, we talk about the link between stress and biology, epigenetics, the limitations of scientific knowledge and science communication, and the indelicate habit so many doctors have of telling patients their mysterious symptoms are “all in their head.” A patient with both Bipolar Disorder and Lupus, Cyrena recently passed the dissertation defense for her PhD with research in inflammatory markers in adults who experienced early life stress.Read More
This week’s episode is a solo show; Cara talks about her period problems, but don’t let that discourage you from listening to this one, she doesn’t even get too graphic about it! She talks about the stigma surrounding menstrual health, and why we need to talk about this stuff more. Cara also explains the difference between PMS and PMDD, and what living with PMDD has been like for her. So grab your snacks and your heating pad, and curl up and listen.Read More
In this week’s episode, Cara talks to former med student and current PhD candidate Cyrena about her experience pursuing higher education in the biomedical sciences, other ways to pursue related interests, what it’s been like to deal with both Bipolar Disorder and Lupus along the way, and the systemic ableism baked in to medicine and medical education.Read More
On this week’s episode, Cara talks to Dior Vargas, Latina feminist mental health activist, about her experiences with depression, suicide rates, and her People of Color with Mental Illness photo project. In honor of Festivus, Cara airs some grievances about medication and its place in our culture, and the false division between mental illness and physical illness. She talks about the Feats of Strength required to make it through the holiday while living with chronic illness, and they discuss getting help, media representation, and how Dior got invited to the White House.
I am so, so excited to bring you this week’s episode of the podcast—and for those of you living with chronic pain, I think you’re really going to enjoy this one too. I talked to Jill Fancher PhD, a pain psychologist who lives with chronic pain herself. We talked about how she came to study pain, the devastation of being stuck in diagnostic limbo, stigma, existing in the liminal space between patient and provider, and the feedback loop between chronic pain, anxiety, and depression.
In this week’s episode, Cara talks to Kirsten Schultz of the blog Not Standing Still’s Disease about her rare condition, Still’s Disease, and where it fits into the picture of autoimmune arthritis. They both make statements in response to last week’s Planned Parenthood attack, and they talk about growing up sick, blogging, what Kirsten hopes to do when she finishes her masters degree in Healthcare Administration, learning to be nice to ourselves, and PTSD.Read More
On this week’s episode of the podcast, In Sickness + In Health goes international! I talk to Ariane, an artist and crafter from Vancouver, Canada. She has a number of longterm, complex symptoms, but has yet to get a meaningful diagnosis. Cara describes some of the differences between the American and Canadian healthcare systems, and they talk about the challenges Ariane has faced in the Canadian system, trying to find answers to her long term symptoms, patient burnout, and figuring out how to live life beyond just coping.Read More