This week’s episode is one to honor Ehlers-Danlos Syndrome Awareness Month, as well as many of the other poorly understood, under-diagnosed conditions that disproportionately affect women, which share May as an awareness month. This episode is actually a re-run of my interview with Rebecca from episode 03, but with an updated introduction and new links on the episode page.Read more
In today’s episode, Chelsea talks about her long term mystery symptoms doctors labelled an unknown rare disease, her complicated relationship with shunts placed to relieve intracranial pressure, her recent Lyme Disease diagnosis that may or may not explain everything, and the lack of knowledge and research that makes that still unclear.Read more
This week’s episode is part two of Cara's conversation with Kirsten Schultz, the guest from episode ten. They talk about how and why Kirsten started the Twitter hashtag #ChronicSex as a safe space to talk more openly about self-care, self-love, sexuality, and intimacy in the context of chronic illness. Cara talks about what she hopes to do with the show in the coming year, and a bit about the difference between gender and sexual orientation. They also talk about their own experience with these topics, and touch on physical therapy and more patient advocacy.Read more
I am so, so excited to bring you this week’s episode of the podcast—and for those of you living with chronic pain, I think you’re really going to enjoy this one too. I talked to Jill Fancher PhD, a pain psychologist who lives with chronic pain herself. We talked about how she came to study pain, the devastation of being stuck in diagnostic limbo, stigma, existing in the liminal space between patient and provider, and the feedback loop between chronic pain, anxiety, and depression.