I talked to Australian Appearance Activist and writer, Carly Findlay, about her experience living with Icthyosis, telling our stories on our own terms, the value of our personal information, identity, and the Australian healthcare system. She also told me about living through my worst nightmare when one of her photos was misused and went viral on Reddit.Read More
CW: eating disorder
In today’s episode I talk to Sofie about her experience in the Norwegian healthcare system as a patient with complex chronic illness. We talk about her experience trying to find a diagnosis that fit her symptoms, how EDS is classified and treated in Norway, and our complicated relationship with weather. In today’s bonus episode, we talk a little more in depth about the interplay between chronic illness and eating disorders, and about the ableism present in many diet communities.
In this week’s episode, Beth talks about the current disability benefits situation in the UK. We talked about the cuts to disability programs, the recent surprise resignation of the mastermind behind many of these cuts, and the NHS approach to pain management—or lack thereof.
In this week’s episode, Cara talks to PhD candidate in Disability Studies, Kim Sauder, about #OrangeGate, the collision of sustainability and accessibility, and her blog post about the kerfuffle sparked by a single snarky tweet.Read More
On this week’s episode of the podcast, In Sickness + In Health goes international! I talk to Ariane, an artist and crafter from Vancouver, Canada. She has a number of longterm, complex symptoms, but has yet to get a meaningful diagnosis. Cara describes some of the differences between the American and Canadian healthcare systems, and they talk about the challenges Ariane has faced in the Canadian system, trying to find answers to her long term symptoms, patient burnout, and figuring out how to live life beyond just coping.Read More