People told me one of the most important things about podcasting is consistency, and delivering an episode on schedule. My bad. Maybe someone with a terribly unpredictable chronic illness shouldn't be a podcaster, then? Whatever. Time is just a construct, right?Read More
Did you get a chance to participate in or read the Storify of last night's first ever #ChronicSex chat, hosted by this week's podcast guest, Kirsten Schultz, and Mariah Forward? If you didn't, check it out, because we had a great chat about self love and self care, relationships, and gettin' it on.Read More
Cathy talks about grief (especially denial), The Spoon Theory, parenting with chronic illness, how her condition has affected her music career, and what it’s like to be “one of the lucky ones,” by having definitive disease markers in her blood. Cara makes an impassioned plea for you to get a flu shot this year, and Cathy shares two songs that she wrote while processing the grief of her illness. She lives with Rheumatoid Arthritis, Sjögren’s Syndrome, POTS, complex chronic headaches, and Interstitial Cystitis.Read More
In episode 01, Lauren talks about her long diagnostic process, misdiagnoses, diagnostic delay, and gives us a crash course on just what dysautonomia is. She is the president of Dysautonomia International, a nonprofit she started in 2012, which has gone on to raise considerable funds for research in a neglected field, and hosts an annual patient-centered conference that doesn’t follow any rules. We talk about that research and the conference, and how exciting it is to get in a room with 400 other people who get it, don’t think you’re crazy, and might even share their Gatorade with you.
Lauren lives with Sjogren’s Syndrome and dysautonomia that includes Postural Orthostatic Tachycardia Syndrome (POTS), Inappropriate Sinus Tachycardia (IST), and Neurocardiogenic Syncope (NCS).Read More
We are launching the In Sickness + In Health blog ahead of Invisible Illness Awareness Week 2015. We will be participating in #iiw15 here on the blog and on social media throughout September in the run up to the official awareness week.Read More