Listen to the Dysautonomia Series

I am SO excited to finally be able to share some of what we've been working on. We're releasing a new episode every day this week to honor Dysautonomia Awareness Month. I am SO excited to finally be able to share some of what we've been working on. We've releasing a new episode every day this week to honor Dysautonomia Awareness Month. Each of the episodes are with dysautonomia patients that have different primary diagnoses and stories to share. We looked at dysautonomia in the setting of autoimmune disease, immune deficiency,  the genetic condition Ehlers-Danlos Syndrome, and Arnold Chiari Malformation, a structural defect when the brain meets the spine.areness Month. I'll be updating this post as we add the rest of the episodes.

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Grief and Everything, All at Once.

One of the challenges of living with complex chronic illness is that when one thing goes wrong, an avalanche of problems is soon to follow. At least that's been my experience, just about every single time I get what I call "regular people sick." This includes things like colds, the flu, sinus infections, and my recent nemesis, the stomach virus. A stomach virus that showed up just in time to help my dysautonomia make me very aware of it for Dysautonomia Awareness Month, and the two year anniversary of a medical procedure that was supposed to be simple and routine, but turned out to be anything but routine and simple.

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