The Podcast

In Sickness + In Health Podcast

In Sickness + In Health Podcast

In Sickness + In Health features discussions about our relationships with our bodies and the intersections with chronic illness, health, disability, and mortality.

We hope that by talking about these issues we can help to normalize them, reduce the stigma, and help all of us to feel a little less alone, and a lot more comfortable talking about it.

You can Like us on Facebook and follow us on Twitter, Tumblr, and Instagram @insicknesspod for updates. We also have a mailing list form on our contact page. Opt in for fun(?) links every week and never miss an episode!

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new Episode

48 Burning Down the House: Some thoughts after the amended AHCA/Trumpcare passed the House of Representatives.

Episode Page 🇺🇸
Transcript coming soon


Special Episodes

What Even IS 'Obamacare' Anyway?: I explain what Obamacare actually is, what the difference is between Obamacare and the Affordable Care Act or ACA (spoiler alert: they're actually the same thing!!), the healthcare law's current status, and what's at stake if it's repealed. Plus: info on the upcoming Women's Marches.

Episode Page 🇺🇸
Transcript coming soon

The Stories We Tell is a special podcast episodefeaturing a handful of MedX ePatients on sharing their own stories and the delicate balance of telling the stories of others. These conversations touched on themes of identity, privacy, patient experience, using technology to find connection, and ways in which we’re trying to compensate for the many deficits that exist in our healthcare system through that connection and storytelling. 

Project Page 🇺🇸
Transcript coming soon

Project UterX (pronounced you-ter-EX) is special podcast project about inclusive gynecological healthcare. It was produced by In Sickness + In Health with Ask Me About My Uterus and MedX Student Advisor + ePatient Delegate, Charlie Blotner, for the 2016 Stanford Medicine X ePatient Storyteller Track.

CW: discussion of suicide rates and transphobia
2016 MedX Student Advisor, ePatient Delegate, and In Sickness + In Health Junior Uterus Correspondent, Charlie Blotner, joins Cara to discuss issues related to accessing gynecological healthcare for transmasculine individuals. They talk about coverage exclusions for transition-related care, gynecological cancer rates, and the exclusionary nature of the gendered language of reproductive health issues. You can see Charlie's ePatient Ignite! talk, "On self-identity, gender, and their impact on whole-person health," from MedX 2015.

Project Page 🇺🇸
Resources and Glossary of Terms
Episode Transcript


Previous Episodes

47 Australian Appearance Activist Carly Findlay: I talked to Australian Appearance Activist and writer, Carly Findlay, about her experience living with Icthyosis, telling our stories on our own terms, the value of our personal information, identity, and the Australian healthcare system.

Episode Page 🇺🇸
Transcript coming soon


46 TDoV w/ S. Leigh Thompson: S. Leigh Thompson talks about the hurdles to diagnosis he's faced as a trans person with complex health issues, healthcare insecurity, getting around the city with mobility limitations, and navigating society with invisible disabilities. This is a "rerun" of one of my favorite episodes from last year, with an updated intro to mark Trans Day of Visibility.

Episode Page 🇺🇸
Transcript coming soon


45 WTF AHCA w/ Emily Ladau: A discussion with disability rights activist, writer and podcaster, Emily Ladau, on the eve of the AHCA vote about the bill, Medicaid cuts, and self-care. The House was scheduled to vote on the AHCA today, but it seems that the bill may actually be dead.

Episode Page 🇺🇸
Transcript coming soon


44 March Madness w/ Christopher Snider: In this episode I check in with regular guest, Christopher Snider, for our bimonthly podcast freakout about all things Trump, health policy, and how we’re dealing. We talk more about the state of Obamacare/ACA’s repeal and replace plan, the AHCA (aka Ryancare, Trumpcare, Republicare, etc.) We discuss the bill’s CBO score, another proposed bill flying under the radar that would allow your employer to require genetic testing and have access to those results, ALEC, and his newest podcast project, Mark All That Apply.

Episode Page 🇺🇸
Transcript coming soon


43 Merciless (AHCA): The long awaited, so-called republican healthcare bill is here, and it’s weird! I tried to explain it for you ¯\_(ツ)_/¯ good luck out there.

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42 Other People's Podcasts: I’m not feeling great this week (lol, surprise), so instead of talking about any of the myriad ways issues of illness, disability, healthcare, and mortality intersect with what’s going on, I’m recommending some other people’s podcasts. My recommendations include shows to hear some of the real human stories behind the politics and policy changes that are dominating the news, as well as updates in health policy, and media analysis.

Episode Page 🇺🇸
Transcript coming soon


41 2 Fast 2 Furious: An update on the first week of Trump's presidency (yikes), the Women's Marches and other protests, resistance, and a note on Holocaust Remembrance Day.

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Transcript coming soon


40 Standing on the Mouth of Hell: Regular guest, Christopher Snider, joins me again to talk more about our dystopian reality, developments since we last recorded in November, self-care and escapism (I Love Lucy! Doctor Who! Chewing Gum! Crocheting!), and weaponized information in the age of Trump. Plus: more information on how to participate remotely in the Women's Marches.

Episode Page 🇺🇸
Transcript coming soon


39 Binders Full of Podcasters: Recurring guest and patient podcaster, Christopher Snider, is back to explain his plan to become the Roman Mars of the patient community. In this episode we also talked about our election feels [~25;00], and talk about how we’re coping in the aftermath. This conversation was recorded in late November, about three weeks after the election. Like the previous week’s episode, the later portion of this conversation is more like a time capsule of where we were, emotionally.

Episode Page 🇺🇸
Transcript coming soon


38 Still Processing: You're never gonna get a hot take from me. It'll usually be room temperature, or perhaps even pretty moldy after sitting in the back of the refrigerator for a few weeks. This is the podcast version of my moldy, not-so-hot take on the recent US election. Recorded a week after, it’s not the most articulate I’ve been on the topic, but it is a time capsule of my feelings—which haven't changed much in the time that has elapsed. I felt I had to put this out before I could move forward with the show.

Episode Page 🇺🇸
Transcript coming soon


CW: death and dying
37 Happy Birthday, Baby!:
It’s our first birthday episode! I decided to do something a little different with it, and asked my oldest friend Casey to interview ME. We talked about why I started the podcast, what the experience of producing it has been like, how it’s been different than what I expected to do, and what might be in store for year two.

Episode Page 🇺🇸
Transcript coming soon


36 ME/CFS & POTS with Ryan Prior: In this episode, I talked to Ryan Prior, co-director and producer of Forgotten Plague, a documentary about ME/CFS. I made Ryan hold the microphone because my arm was tired, and he wound up kind of interviewing me a bit. We talked about ME/CFS, POTS, how the two patient populations overlap, and some of the performative aspects of being a patient. I talked about living with and trying to manage POTS, quality of life, and try to answer the question posed by the MedX Studio Space of how to foster disruptive co-creation in healthcare. This conversation was recorded at the 2016 Stanford Medicine X conference in September, where Ryan and I were both ePatient Delegates on the Storyteller Track.

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Partial Transcript


35a Sex Geek, Chronic Migraineur and American Treasure: In the first episode, Kate talks about her experience in the Australian healthcare system while she was getting her Masters in Public Health down under, her work as a freelance sex educator including her recent west coast teaching tour and founding Sex Geekdom and Tea & Empathy, the stigma surrounding sexually transmitted infections and disclosure, and the difficulty of making new friends as a grownup.

CW: needles, cannabis use
35b Sex Geek, Chronic Migraineur and American Treasure: In the second episode, we compare notes about living with Chronic Migraine and our attempts at managing the condition, migraine literacy among doctors we’ve seen, and regularly sticking needles in our heads because that’s somehow preferable to the migraines. We also talk about New York’s restrictive medical cannabis program, harm reduction and empathy, linguistic precision and Kate's Tea & Empathy workshops.

Episode Page 🇺🇸🇦🇺
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34 The Hill I Wanna Die On: In the main episode, I talk to Keah Brown about her writing, growing up disabled with an able bodied twin sister, visibility and intersectionality, get real about learning to be nice to ourselves,  not seeing herself as a black disabled woman represented in media, and what Keah plans to do about it. In the bonus episode we talk about mental health, writing to connect, working remotely as a bridge to employment for some people with disabilities, and what a pain in the ass filing for SS Disability is. 

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33 Allie Cashel on Suffering the Silence: I talked to Allie Cashel, author and co-founder of Suffering the Silence about her book, the current state of the complicated issues related to Lyme Disease, writing, certainty, and the stress of living with Lyme Disease and all its baggage. If you missed last week’s episode, I talked to her Suffering the Silence co-founder, Erica Lupinacci, about her health advocacy, media portrayal of chronic illness and disability, challenges she’ll face as an actor with a disability, and doing everything right and still being sick.

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CW: weight and diet
32 What is This Life?: In today’s episode I talked to Erica Lupinacci about her health advocacy with HIV/AIDS and through Suffering the Silence, her own experience living with Lupus, media portrayal of chronic illness and disability, challenges she’ll face as an actor with a disability, doing everything right and still being sick, illness on social media, the nightmare of American health insurance, and traveling with an unpredictable illness.

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CW: eating disorder
31 Tough in Any Weather: In this episode I talk to Sofie about her experience in the Norwegian healthcare system as a patient with complex chronic illness. We talk about her experience trying to find a diagnosis that fit her symptoms, how EDS is classified and treated in Norway, and our complicated relationship with weather. In the bonus episode, we talk a little more in depth about the interplay between chronic illness and eating disorders, and about the ableism present in many diet communities.

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30 Fill in the Blank Awareness Month: This week’s episode is one to honor Ehlers-Danlos Syndrome Awareness Month, as well as many of the other poorly understood, under-diagnosed conditions that disproportionately affect women, which share May as an awareness month. This episode is actually a re-run of my interview with Rebecca from episode 03, but with an updated introduction and new links on the episode page. In this interview, Rebecca talks about the ups and downs of EDS, their long and winding diagnostic process, working 10x as hard to be half as healthy as everyone else, and redefining their value while not being able to work a paying job.

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29 Digital Red Tent: Friend of the podcast Abby Norman (from episode 16) and I got together to debrief about the Endometriosis Foundation of America conference we attended. We actually didn't wind up talking about it much (sorry! ¯\_(ツ)_/¯), but we covered some of it, what patients really need until there's more consensus on how to treat the condition, medical debt, menstrual stigma, bleeding on things, personal care, and living with chronic fatigue.

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CW: graphic description of open heart surgery, sibling loss, death + dying
28 Broken Hearts: In today’s episode, Alex talks about his experience with Hypertrophic Cardiomyopathy, having open heart surgery at 16, almost dying a couple times, his work in assisted living, and—my favorite topic—death in our death phobic culture. In the bonus episode he answers my Big Healthcare Question, and we talk about all of my arrhythmias and my own heart mysteries.

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27 A Place I've Gone for Necessity: In today’s episode, S. Leigh Thompson talks about the hurdles to diagnosis he's faced as a trans person with complex health issues, healthcare insecurity, getting around the city with mobility limitations, and navigating society with invisible disabilities. In the bonus episode we talk intersectionality, the spectrum of ability and access, disclosure, hormones, and the potential for allyship between the the trans and disability communities.

Episode Page 🇺🇸
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CW: Suicide
26 Disability Cuts in the UK: Beth talks about the current disability benefits situation in the UK. We talked about the cuts to disability programs, the recent surprise resignation of the mastermind behind many of these cuts, and the NHS approach to pain management—or lack thereof.

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25 Transplants + Inside Baseball: Nikki talks about qualifying and listing for a double lung transplant due to her rare disease LAM. We talk transplant stuff and get Nikki’s insider perspective on the American healthcare system—she used to work on the inside of health insurance and has a unique perspective on what the future might hold for the system.

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24 Building a Mystery: Chelsea talks about the long term mystery symptoms her doctors labelled an unknown rare disease, her complicated relationship with shunts placed to relieve intracranial pressure, her recent Lyme Disease diagnosis that may or may not explain everything, and the lack of knowledge and research that makes it all still so unclear. In today’s bonus episode, we talk about the emotional trauma of being undiagnosed for so long, forced positivity and inspiration porn, her blog and misadventures in dating, and the sometimes dangerous business of being a woman in the world.

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23 When Sustainability + Accessibility Collide: PhD candidate in Disability Studies, Kim Sauder, talks about #OrangeGate, the collision of sustainability and accessibility, and her blog post about the kerfuffle sparked by a single snarky tweet.

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22 Pain is Personal + Bonus Episode: Jen talks about needing regular opioid pain medication at a time when those medications are public enemy number one. They talk about why she needs access to these medications, how we deal with drugs here in the US, how that has created a climate in which we can't have open and honest conversations about drug use, and how challenging it can be to really treat chronic pain. They discuss the important distinctions between addiction, abuse, and dependence, and the many trade-offs and compromises we often have to make in treating chronic health conditions. In the bonus episode, they talk about cognitive difficulties and brainfog, privilege and the response to the current opioid epidemic in contrast with the response to the crack epidemic in the 80’s, and the social isolation of being non-drinkers in their 20’s.

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Rare Disease Day Special Bonus Episode: This episode is our first clip show! You may or may not have noticed that we’ve been making a podcast that's secretly about rare disease all along, so it was really exciting to put some of those clips together in this episode. So far In Sickness + In Health has featured several people with rare and rarely diagnosed diseases and disorders, as well as people with rare manifestations of more common conditions. The episode highlights some of the challenges of living with rare conditions, told as only those who have lived them can.

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21 One Thing After Another + Bonus Episode: Heather talks about developing post traumatic stress symptoms after medical experiences related to her complex chronic illness. In the bonus episode, they talk a bit about some of the therapies that have been studied as treatments for PTSD, including Heather’s experience with EMDR. They also talk about rates of PTSD among survivors of different kinds of traumatic events, and how it is often portrayed in the media, which comes with a few Grey’s Anatomy spoilers—but nothing from this current season.

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20 Lowkey Traumatic + Bonus Episode: Soul talks about some of the traumatic medical experiences they went through during their childhood, including three skin expander surgeries following the removal of a birthmark on Soul’s head. They talk about those surgeries, being undermedicated most of that time, finding out about a codeine allergy the hard way, not realizing how traumatic it all was until much later, and how that’s complicated the process of transitioning from pediatric to adult care. In the bonus episode, they talk about needle phobia and figuring out Soul was autistic late in their teens.

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19: Keep Telling It and Keep Telling It + Bonus Episode: Storyteller and senior producer of The Story Collider podcast, Erin Barker, talks about her experience with Interstitial Cystitis and Vulvodynia, some of the the uncomfortable social situations her condition has put her in, being the weird girl at work, and the magic of Botox. In the bonus episode they talk about podcasting and sharing their stories, Erin's work with The Story Collider and The Moth, and the somewhat unorthodox relationship she developed with her faith during some of the darker times in her experience with IC and Vulvodynia.

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18 Well It's Complicated: K talks about what is considered "normal" vs. "disordered" behavior, being non-gendered, the intersection of fat hatred, sexism + ableism, embodying the fears of the able bodied, imagined expertise, and the dual reality of self diagnosis—especially for those living with difficult to diagnose conditions.

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17 It's 'Just' Stress + Bonus Episode: Cyrena talks about the link between stress and biology, epigenetics, the limitations of scientific knowledge and science communication, and the indelicate habit so many doctors have of telling patients their mysterious symptoms are “all in their head.” A patient with both Bipolar Disorder and Lupus, Cyrena recently passed the dissertation defense for her PhD with research in inflammatory markers in adults who experienced early life stress. The bonus episode is the story of her experience with a rare spinal cord stroke two years ago, and not taking her own serious symptoms seriously.

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16 Fun With Endometriosis + Bonus Episode: Writer Abby Norman talks about her experience with Endometriosis, how difficult it can be to get it diagnosed, having others value her fertility and the satisfaction of her male sexual partners above her own health and quality of life, and the book deal she just signed to write about it all. Episode 16 picks up Abby’s story a few years into her experience with Endometriosis, but today's bonus episode is her story of when it all started and her first surgery.

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15 Am I Dying or Just Getting My Period?: This episode is a solo show; Cara talks about her period problems! She talks about the stigma surrounding menstrual health, and why we need to talk about this stuff more. Cara also explains the difference between PMS and PMDD, and what living with PMDD has been like for her. So grab your snacks and your heating pad, and curl up and take a listen.

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14 Let's Get Physical: Kirsten talks about how and why she started the Twitter hashtag #ChronicSex as a safe space to talk more openly about self-care, self-love, sexuality, and intimacy in the context of chronic illness. Cara talks about what she hopes to do with the show in the coming year, and a bit about the difference between gender and sexual orientation. They also talk about their own experience with these topics, and touch on physical therapy and patient advocacy. Kirsten hosts regular, weekly #ChronicSex Twitter chats; you can follow along and/or participate on Twitter, using the tag #ChronicSex, Thursdays at 7pm EST.

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13 Why Stop at One?: Former med student and current PhD candidate, Cyrena, talks about her experience pursuing higher education in the biomedical sciences, other ways to pursue related interests, what it’s been like to deal with both Bipolar Disorder and Lupus along the way, and the systemic ableism baked in to medicine and medical education.

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CW: Suicide
12 A Festive Holiday Episode About Depression w/ Dior Vargas: Latina Feminist Mental Health Activist, Dior Vargas, talks about her experiences with depression, suicide rates, and her People of Color with Mental Illness photo project. In honor of Festivus, Cara airs some grievances about medication and its place in our culture, and the false division between mental illness and physical illness. She talks about the Feats of Strength required to make it through the holidays while living with chronic illness, and they discuss getting help, media representation, and how Dior got invited to the White House.

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CW: Suicide
11 What a Pain w/ Jill Fancher PhD: Jill Fancher PhD talks about her experience as a pain psychologist who lives with chronic pain herself. We talk about how she came to study pain, the devastation of being stuck in diagnostic limbo, stigma, existing in the liminal space between patient and provider, and the feedback loop between chronic pain, anxiety, and depression. The episode-specific resources page includes vocabulary and resources from this episode.

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10 Not Standing Stills Disease w/ Kirsten Schultz: Blogger Kirsten Schultz talks about her rare condition, Still’s Disease, and where it fits into the larger picture of autoimmune arthritis. They both make statements in response to the previous week’s Planned Parenthood attack, and they talk about growing up sick, blogging, what Kirsten hopes to do when she finishes her masters degree in Healthcare Administration, learning to be nice to themselves, and PTSD.

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09 Complex Patients Across the Border: Ariane, an artist and crafter from Vancouver, Canada, talks about her long term, complex symptoms that have yet to get a meaningful diagnosis. Cara describes some of the differences between the American and Canadian healthcare systems. They talk about the challenges Ariane has faced in the Canadian system, trying to find answers to her long term symptoms, patient burnout, and figuring out how to live life beyond just coping.

Cara also asks for your funny stories about unexpected bodily excretions for an upcoming episode full of listener stories. You can read more about her request and find out how to submit your own story here.

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08 Glaucoma + Inflamation -itis Things: Beata talks about being an adoptee with no family health history to rely on, accessible transportation, her work with the NGO, Glaucoma Eyes, and getting published in an anthology of adult adoptee stories. She was born in Poland with cataracts, developed glaucoma during childhood, and is now dealing with some autoimmune issues including Hashimoto’s disease.

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07 My Disease Secret w/ Christopher Snider: In this episode Cara finally talks to someone with a disease people have actually heard of: Type 1 diabetes. Christopher Snider is creator of the My Disease Secret communities, ePatient advisor for Stanford’s MedicineX conference, blogger at tobesugarfree.com, and host of the Just Talking podcast. He talks about living with Type 1 Diabetes, the divides within the diabetes community, getting involved in the community himself, and launching the My Disease Secret platforms.

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06 Accessibility Means More Than Ramps - Part Two: Cara and Rebecca invite you to challenge some of what you think you know about disability, and the cultural messages we get about what a Disabled Person is. They discuss self advocacy, Rebecca's work toward better accessible transit options for Philadelphia and plans for a queer disability justice project, diversity of disability, and some of the social and economic issues that face the chronically ill and people with disabilities. They also talk about what they worry about, SSDI, and Imposter Syndrome.

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We launched the podcast with a series of episodes—one for every day of the last week of Dysautonomia Awareness Month. Each of the episodes are with dysautonomia patients that have different primary diagnoses and stories to share. Dysautonomia is a blanket term for conditions that affect the Autonomic Nervous System, which is the part responsible for all the stuff that's supposed to happen automatically in your body. In our episodes from that week (01-05), we talked about misdiagnoses and diagnostic delay, trying to do life stuff while chronically ill, the wonders of high sodium diets, grief and denial, The Spoon Theory, and working 10x as hard to be half as healthy as everyone else.

05 Autoimmunity + Friends: Cathy talks about grief (especially denial), The Spoon Theory, parenting with chronic illness, how her condition has affected her music career, and what it’s like to be “one of the lucky ones,” by having definitive disease markers in her blood. Cara makes a plea for you to get a flu shot this year, and Cathy shares two songs that she wrote while processing the grief of her illness. Cathy lives with Rheumatoid Arthritis, Sjögren’s Syndrome, POTS, complex chronic headaches, and Interstitial Cystitis.

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04 My Brain Was Falling Out of My Skull!: Becca talks about having Giardia as an infant, traveling with an unpredictable chronic illness, having brain surgery... twice, the wonders of high sodium diets, and her video game web series, Millennial Fair. Becca lives with Ehlers-Danlos Syndrome, Arnold Chiari Malformation, and POTS.

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03 Accessibility Means More Than Ramps - Part 1: Rebecca talks about the ups and downs of EDS, their long and winding diagnostic process, working 10x as hard to be half as healthy as everyone else, and redefining their value while not being able to work a paying job. Rebecca lives with Ehlers-Danlos Syndrome (EDS), dysautonomia including POTS, Mast Cell Activation Syndrome, gastroparesis, and several other diagnoses.

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02 Lets Feel Better w/ Ilana Jacqueline: Ilana talks about 'failing' alternative medicine, how she manages her career, blogging, the horrors of GI testing, crying in parking lots, and attempting wedding planning while living with a very unpredictable, and very time consuming chronic illness. Ilana lives with a primary immune deficiency disease, dysautonomia, and gastroparesis.

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01 Dysauto-whatta?! w/ Lauren Stiles: Lauren talks about her long diagnostic process, misdiagnoses, diagnostic delay, and gives us a crash course on just what dysautonomia is. She is the president of Dysautonomia International, a nonprofit she started in 2012, which has gone on to raise considerable funds for research in a neglected field, and hosts an annual patient-centered conference that doesn’t follow any rules. We talk about that research and the conference, and how exciting it is to get in a room with 400 other people who get it, don’t think you’re crazy, and might even share their Gatorade with you. Lauren lives with Sjogren’s Syndrome and dysautonomia that includes POTS, Inappropriate Sinus Tachycardia, and Neurocardiogenic Syncope.

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00 Welcome to In Sickness + In Health: Cara introduces the podcast and talks about why she started the show, what’s she’s learned along the way, and where she hopes the show will go. She also includes some clips from what’s to come on In Sickness + In Health.

Episode Transcript